Developmental Verbal Dyspraxia

What is Dyspraxia?                                               SONY DSC

A motor programming disorder.  In simple terms: The brain and the muscles are working normally, but the message being sent from the brain to the muscles gets lost, resulting in coordination difficulties.

What is Developmental Verbal Dyspraxia?

A type of dyspraxia that begins in infancy and affects the muscles needed for speech.

It is thought that developmental dyspraxia can occur as 3 separate subtypes, and it is possible for children to have just one, two or all 3 of these:

1.  A general body dyspraxia (e.g. may be clumsy, difficulty with coordinating movements for riding a bike etc)

2. Oro-motor dyspraxia (difficulty voluntarily moving tongue/ lips, not related to speech)

3. Verbal dyspraxia (affecting coordination of speech sounds)

Developmental Verbal Dyspraxia (DVD) is the term used in the UK, whereas Childhood Apraxia of Speech (CAS) is preferred in the US, Australia and many other countries.  There are subtle differences in the meaning behind these terms, which is why the UK have opted to keep DVD, but in essence they are describing the same condition.  It would be wise to search for both terms if you were looking for research or information into the condition.

What does it look like?

A child with DVD often has severe speech sound difficulties, that persist over a number of years.  Researchers have not been able to come up with one set of symptoms that allow us to easily identify DVD, and separate it from other conditions.   There is uncertainty around its diagnosis, although there is no longer any doubt that it does exist. Some believe that DVD is over-diagnosed, and that children may have ‘Expressive Language Disorder’, ‘Inconsistent Speech Disorder’ or  ‘Phonological Disorder’ rather than DVD.  It is advised to wait until children are 6 or 7 before giving a diagnosis and it may be better to describe the child as having ‘suspected DVD’ or ‘features of DVD’.  The RCSLT favour using the description ‘symptom cluster’ and describe it as an unfolding and changing condition as the child grows.

Most clinicians agree that:

  • Children with DVD often find involuntary movements easier than voluntary ones.  So they can perform a task automatically when they are not thinking about it, but that same movement becomes extremely difficult when asked to perform it on demand.  This makes therapy challenging for the child as they find imitating speech movements very difficult.
  • You may also see evidence of the child searching for the correct placement of the mouth/ tongue.
  • Children will have difficulty sequencing sounds.  Their speech may be made up of lots of vowel sounds; or just one or two same consonants repeated throughout their talking.  Their speech is often very difficult to understand (intelligibility).  Vowel sounds may not be accurate.
  • They may have an unusual voice quality, or uneven rhythm when talking.
  • May have had feeding difficulties or excessive drooling.
  • Likely to have been late to talk and may have not babbled.
  • Sometimes there is a family history of speech, language or literacy problems

 Assessment:

Assessment should be carried out be a specialist Speech and Language Therapist who has knowledge and experience of working with children who have severe speech sound difficulties.  There is one specialist centre in the UK who can provide diagnosis and management support, or give second opinions: the Nuffield Centre in London.  You can view their referral guidelines here: http://www.ndp3.org/dyspraxia-referral-guidelines.html, however they require the child to have 20-30 spoken words before they will consider assessing them.  They also offer training for speech and language therapists in using their assessment and treatment package: ‘The Nuffield Centre Dyspraxia Programme’ (NDP3).

Therapy and Intervention

The Nuffield Dyspraxia Centre advocate a ‘bottom-up’ approach whereby the child is taught the individual building blocks for each individual speech sound and is then taught to combine these into small segments, these are then practiced in simple words.  Each level is carefully graded so that the child has consistent motor programs for each element and then builds on this.

Another treatment approach that is gaining popularity for inconsistent speech is known as ‘Core Vocabulary’.  Therapy targets a particular set of words that are motivating to the child and aims to ensure they use their best attempt at saying these words clearly.

For some children alternative methods of communicating will be needed, such as using signs, symbols or an electronic device.  Children with DVD will need a considerable amount of therapy and support from parents and school to provide frequent practice of their therapy goals.  Some children may benefit from a specialist school placement such as a Speech and Language unit attached to a mainstream school.

ASHA (2007) stress the need for intensive and individualised treatment.  RCSLT (2011) state there is no robust evidence for ‘blocks and breaks’ of style of therapy or consultative/ advisory models of service delivery (p.18)

Summary:

DVD is a speech sound disorder affecting children’s ability to learn and coordinate movements for speech.  As yet, there is no known cause and it can occur alongside other difficulties.  Most children with DVD can develop clear speech with appropriate help from a specialist speech and language therapist.  Patience, encouragement and plenty of practice are all essential, as well as consideration for the child’s emotional well-being

Resources:

The Royal College of Speech and Language Therapists (RCSLT) Policy Statement on DVD (20011) https://www.ucl.ac.uk/pals/study/cpd/cpd-courses/files/dvd-rcslt-policy-nov-2011.pdf

The American Speech-Language-Hearing Association Position Paper on Childhood Apraxia of Speech (2007) http://www.asha.org/policy/PS2007-00277/

Nuffield Centre Dyspraxia Programme http://ndp3.org/

http://www.apraxia-kids.org

http://www.dyspraxiafoundation.org.uk

Support and information regarding communication difficulties:

https://www.thecommunicationtrust.org.uk/

http://www.ican.org.uk/

Home

Find and Independent Speech and Language Therapist in your area:

http://www.helpwithtalking.com

Selective Mutism

‘Selective Mutism’ it’s a funny term really.  It is a label used for someone who is mute (doesn’t speak) in some situations and not others.  Typically it is a child who doesn’t stop talking at home, but as soon as they are in a different environment, such as school or with less familiar people,  they become silent. 

Image I was privileged enough to attend a course by Maggie Johnson last week, and gladly, some of my pre-conceptions have been challenged.  Maggie has been a leading author and advocate in the field of Selective Mutism for some 30 years.  She humbly claims to have only really got to grips with it in the past 16 years, greatly helped by her increased understanding of ‘phobias’.  Her daughter suffered a number of severe phobias which were life-limiting for the whole family.  Maggie believes that viewing Selective Mutism as a phobia of talking is the best way of understanding its cause and facilitating effective treatment.

It may also be better to think of this anxiety disorder as Situational Mutism.  The term ‘selective’ might imply that the child has some control over when they talk and when they don’t; which is not the case. 

As with most phobias, Maggie says it is often the result of a previous negative event that has been associated with the thing we are phobic of.  She gives the example of a child being lost, or in hospital and they feel scared and alone; other well-meaning adults  often then enter into a barrage  of questions:  ‘What’s your name? Where’s your Mummy?’ …  and so on,  when actually the child is in such a panic that they can’t answer.  The anxiety is rooted in the fear of being lost, but there is a negative association created whereby future feelings of insecurity result in a fear of speaking.

The incidence of Selective Mutism is thought to be approximately 1 in every 150 children, with slightly more girls affected than boys.  This means there could be at least one child in every primary school suffering from it.  Government initiatives in recent years have increased pressure to develop speaking skills in pre-school settings, which for some children is too much, too soon.

 

What can we do to help?

Unfortunately, this is a group of people who have very little free help from  Health, Education or Psychology services.  Some parts of the country run workshops to inform and educate parents and professionals in the techniques that can help overcome this anxiety disorder.  A trained person is needed to facilitate a ‘desensitisation’ program; however, this does not need to be a speech and language therapist.  The program involves taking all of the pressure to talk away.  Once the child feels comfortable, an adult uses very tiny steps to gradually introduce new people and environments to the child at a pace that they can cope with.  It can be a very rewarding journey if handled sensitively, and it should be carried out at a young age. Maggie states that children who live with Selective Mutism for many years are at high risk of developing secondary social phobias, with many female teenagers that she has worked with resorting to self-harm.

Key points:

– It’s not refusal to speak or stubbornness –It is a phobia, think ‘can’t’ rather than ‘won’t.

– It is vital that the pressure to talk is completely removed.  Then, skilfully and sensitively, balance this with encouraging the child to extend where and to whom they feel comfortable talking.

– You will need support from someone who has had training in Selective Mutism.  Techniques include ‘sliding-in’, ‘stimulus fading’ and ‘shaping’.

– Don’t be afraid to acknowledge the child’s feelings of anxiety.  Reassure them that other children have those feelings too, and that you can help the feelings go away.

 – With the child’s permission, explain Selective Mutism to their classmates.

– Find alternative ways for the child to participate in class and to build self-esteem that don’t involve talking.

– Make sure information is available to all staff, including supply teachers.  You can download a leaflet here http://www.smira.org.uk/downloads/smira-leaflets and keep a laminated copy handy in the classroom.

 

Resources and Further Info:

www. smira.org .uk  (Selective Mutism Information & Resource Association based in Leicester)

www.anxietyuk.org.uk  

Johnson M and Wintgens A (2001) ‘The Selective Mutism Resource Manual’ Speechmark Publishing

‘Facing Fears’ Social Skills poster available from www.taskmasteronline.co.uk

Johnson, M and Wintgens, A (2012) ‘Can I tell you about Selective Mutism: A guide for friends, family and professionals’ Jessica Kingsley Publishers (available on Amazon)

Johnson, M and Jones, M (2012) ‘Supporting Quiet Children’ Lawrence Educational (Practical ideas to build confidence in young children)

Longo, (S 2006) ‘My Friend Daniel Doesn’t Talk’ Speechmark Publishing

www.helpwithtalking.com (a national database of Independent Speech and Language Therapists who may be able to support you)

Should I give my child a dummy?

Ok, this is a very controversial topic, and I run the risk of upsetting many parents, but here goes….
This is my personal opinion – it is based on sound theoretical knowledge and several years of experience as a Speech and Language Therapist, plus being a Mummy of 2 myself and previously running TinyTalk Baby Signing Classes where I have seen hundreds of babies and parents with and without dummies.
Dummies soothe young infants because babies have a natural in-built desire to suck, so without a dummy parents can spend hours pacing the floor with their baby trying to comfort them in other ways. When teething starts, babies are often in even greater need of that comfort. This is why I offered both of my children dummies once breast feeding had been firmly established (which was advised by my Health Visitor to avoid nipple confusion). Neither of my children took particularly well to a dummy at first, daughter number 1 later accepted one but only if it was of a particular type, and daughter number 2 found her thumb at a few days old and has always used that to soothe herself (such a nightmare for a SLT to have a thumb-sucking daughter, but I’ll save that for another blog!).
So, great… baby is sleeping at correct time and for long periods, albeit with unavoidable midnight fumblings to put lost dummy back in her mouth – the glow in the dark ones were fab!). Then comes the realisation that both you and your little one are very dependent on the pacifier! You desperately try to put it in when they scream the whole way round the supermarket, or absentmindedly push it into their mouth out of habit as you put them into the car, even though your baby isn’t fussing.
It’s important to remember that crying is one of the few ways that young babies can communicate and when they cry they are telling us something and we shouldn’t always reach for the dummy to quieten them. Talking to them and using all of the other methods that we instinctively do to soothe them may work just as well sometimes.
Now we come to the danger zone! I strongly feel that dummies are good for babies for the reasons mentioned above. There is also some research that suggests dummy use in babies can reduce cot death. You will notice that I am now highlighting the word BABIES.
And here comes the speech and language development part – most children start to babble and say their first words around 9-12 months. If you have a big piece of plastic in your mouth you can’t practice these skills and you are far more likely to sit their happily sucking on your dummy when other babies are crying, shouting, babbling and talking. This is why I got rid of my daughter’s dummy as soon as the main teething stage was over, which for us was about 9 months.
My advice in a nutshell:
Having a dummy up until their first birthday = Fine
Using a dummy after their first birthday = Absolutely not!
It also becomes so much harder the older your child gets to convince them that it is a good idea to get rid of the thing that they love the most. Do it before they realise. Go cold turkey, set aside 3 days where you prepare yourself for the return of sleepless nights, and just get rid!
So there you go. I am sure there are many people with special circumstances who may want to keep using a dummy for all sorts of reasons, but in the vast majority of cases, if you want to give your child the best possible chance of developing their speech and language, they need to have their mouth free of foreign objects! I am sure you have seen the children with dummy-shaped teeth; it also changes the shape of the inside of the mouth which is why they end up needing help with forming clear speech, along with delayed language as a result of not having as much opportunity to babble and attempt words.
Getting rid of the dummy is not easy, I understand that, and its easy to think of reasons why not to do it. But it is one of the best things that you can do for your child. Early language development is a vital foundation for all sorts of things like literacy and cognitive development.
Lots of people say ‘they only have it at night’, and that is far better than having it in the daytime. Make sure you pull it out once your child is asleep and try to swap it for a toy/ give it to a new baby/ Santa/ The Easter Bunny or whatever so that they can be totally free of it as soon as you can.

Good luck!

Hannah Beckitt
Independent Speech and Language Therapist
http://www.speechbubbletherapy.co.uk

What is Independent Speech and Language Therapy?

Most people would be familiar with the idea of going to see a private Physio, for example, if you had a dodgy knee and your GP wasn’t giving you the answers you were hoping for.

It is the same in Speech and Language therapy – if you are not satisfied with what the NHS can offer, you have the option of seeking help from a private Speech and Language Therapist – although confusingly, we call ourselves ‘Independent’ rather than ‘private’.

Independent Therapist have undergone the same training as NHS ones, and have to comply with the same rules and regulations in term of maintaining our skills.  Also like our NHS colleages, we must be registered with the Health Professions Council and the Royal College of Speech and Language Therapists.  Most of us also choose to  belong to a national organisation that supports Speech and Language Therapists in Independent Practice (ASLTIP).

All Speech and Language Therapists work differently, and that is also true in the NHS. There are many varied approaches and some favour one approach over another, indeed our profession thrives on debate about which methods are the most effective.  So you may have a varied experience of speech and language therapy, whether you are using an NHS therapist, an Independent Therapist, or a  combination of both.

I encourage my clients to use my services in conjunction with what the NHS can provide and I do my very best to make sure that the combined therapy package is co-ordinated.

The nice thing about Independent SLT is that there is more flexibility in terms of when, where and how long you receive therapy.  You are unlikely to encounter waiting lists and if you don’t have a positive relationship with the therapist, try someone else!  It is important to do a bit of research – check that the therapist is registered with HPC (see their website) and ASLTIP.  Give the therapist a call and ask about their experience and skills in working with your particular difficulty.

A great place to start for more information is the ASLTIP website http://www.helpwithtalking.com and you can also do a postcode search to find your nearest therapist.

We really are very friendly 🙂